A poem to express a day in the life of my son.

Please do not stare at me with judgement in your eyes

I woke up this morning and the world felt wrong
My socks attacked my feet - I threw them across the room.  My brother breathed on my toast - I couldn’t eat it
Please do not stare at me with judgement in your eyes

I went to school this morning and the world was noisy
Voices exploded in my ears - I hid under the table
The teacher was different - I stayed in the corner
Please do not stare at me with judgement in your eyes

I went to play at lunchtime and the world felt lonely
Kids played around me - I sat and watched
Kids talked to me - I looked at my feet
Please do not stare at me with judgement in your eyes

I went back to class and the world smelt yucky   
Somebody’s lunch stank - I blocked my nose
Other smells collided -I gaged and retched.
Please do not stare at me with judgement in your eyes



I went to the car after school and the world was overwhelming

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My brother sat in my seat - I screamed and screamed
Daddy sounded mad - I cried and cried
Please do not stare at me with judgement in your eyes

I went to have dinner and the world looked different
The chicken looked wrong- I did not eat it
The potatoes felt old - I spat them out
Please do not stare at me with judgement in your eyes

I went to bed and the world kept spinning
I woke up this morning and the world felt wrong

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My socks attacked my feet
My brother breathed on my toast
Somebody’s lunch stank
I gaged and retched.
My brother sat in my seat
Somebody’s lunch stank
Daddy sounded mad
My brother breathed on my toast   
My brother breathed on my toast
My brother breathed on my toast

Podcast Interview for Connect Inform Support

Hi I had the privilege of being interviewed for the Connect Inform Support programme on Free FM.

The blurb says
"A show created and hosted by Parent to Parent – the not-for-profit organisation supporting families and whanau of babies, children, teens and adults with any type of disability or health impairment. The show focuses on services and help available and also discusses issues and news of interest and importance to those families."

This is the link to listen online or to download the file to listen later.